WHAT IS USHER SYNDROME?
Usher syndrome is an inherited condition that involves both hearing loss and visual loss caused by Retinitis Pigmentosa (RP). A proportion of patients also experience difficulties with their balance. Usher syndrome is a rare condition that affects around 4 – 17 in 100,000 people worldwide.[1]
The condition is categorised into three subtypes depending on the severity of hearing loss and whether there are any difficulties with balancing. The three subtypes are:
- Usher syndrome type 1
- Usher syndrome type 2
- Usher syndrome type 3
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Our founder Jo Milne has been invited to join the King at Buckingham Palace for her...
Every fingerprint is unique.
Every person is unique.
Our Mission:
"Cure Usher find and fund leading research on Usher syndrome, support and advocate with respect, and aim to provide meaningful, equitable impact throughout the journey for those living with Usher syndrome"
MEET THE PEOPLE BEHIND CURE USHER
...and those by their side too.
JO MILNE
Founder
An advocate and expert by her own lived experience, Jo has been heavily involved in communications within Healthcare, Government and Parliament to ensure the voices of those living with Usher syndrome are heard.
Always striving for meaningful change in attitudes and pushing for increased research for Usher syndrome, Jo is tireless in her passion for a search for a Cure.
OUR RESEARCH
Cure Usher are proud to fund current leading research projects in the UK.
At present we have an agreement with University College London (UCL), to DIRECTLY fund Professor Mariya Moosajee MBBS BSc PhD FRCOphth, Professor of Molecular Ophthalmology at UCL Institute of Ophthalmology, for her groundbreaking work on Usher syndrome.
Quarterly payments are made with the proceeds direct from fundraising efforts that you all donate, empowering a meaningful difference in the search for a cure.
DONATE & SUPPORT
Currently, there is no cure for Usher Syndrome.
Your generous donations are helping to find a cure for Usher Syndrome, as well as supporting people with Usher Syndrome & their families.
You can donate and support us through various methods including: JustGiving, Enthuse and direct via Bank Transfer.
Thank you again for all of your support.
The Cure Usher Team.
USHER SYNDROME FINGERPRINT PIN
We are in the process of producing our very own Cure Usher Syndrome pins for everyone to show their support with.
Raise awareness and start a conversation with our trademark fingerprint enamel pin.