Representatives from Cure Usher Syndrome were proud to attend the USH2026 Connections Conference in Bloomington, Minnesota, joining hundreds of delegates from around the world united by one goal—to improve the lives of people living with Usher syndrome and accelerate the search for treatments and, ultimately, a cure.
Representing Cure Usher Syndrome were Sharon Rowe, Chris Rowe and Mark Jordon, who spent the weekend meeting researchers, clinicians, biotechnology companies, charities and families from across the international Usher community.
The conference provided an inspiring programme of presentations covering the latest advances in genetics, emerging therapies, clinical trials, patient advocacy and future research. Delegates also heard directly from individuals and families living with Usher syndrome, reinforcing the importance of collaboration between scientists and the communities they serve.
Throughout the conference, our representatives developed valuable new relationships with researchers, advocacy organisations and industry partners. These conversations will help strengthen Cure Usher Syndrome’s international network and create opportunities for future collaboration, ensuring that our charity continues to bring the latest developments back to the UK community.
Beyond the scientific updates, the conference offered something equally important—hope. Seeing so many dedicated professionals, researchers and families working together towards a common purpose was both inspiring and motivating.
We return from Minnesota with new knowledge, new partnerships and renewed determination to continue funding research that protects sight and moves us closer to effective treatments for everyone living with Usher syndrome.
We would like to thank the Usher Syndrome Coalition for organising such an outstanding event and for bringing together the global Usher community.
The future is built through collaboration, and we are proud that Cure Usher Syndrome is playing its part.
One gene. Two senses. No time to lose.