Sharon is a dedicated advocate for the Usher Syndrome community and serves as a trustee and Charity Liaison for Cure Usher. Living with Usher Syndrome herself, she brings a deeply personal perspective to her role, ensuring that the voices of those affected are heard and represented.

With a strong focus on public and patient involvement, Sharon works to build meaningful connections between Cure Usher and other organizations in the sight and hearing loss sector. She is passionate about raising awareness, and fostering collaboration to drive research and support for those living with the condition.

Through her work in advocacy, outreach, and public engagement, Sharon is committed to making a lasting impact on the Usher Syndrome community, striving for greater visibility, inclusivity, and progress towards a cure.